Tuesday, May 26, 2009

DISCHARGED


A lot has happened in the last two days. As you have probably read, the only thing we were waiting on was for Bentley to gain weight and keep her meds down so they could take the IV out. That was yesterday morning.. later yesterday when the doctors made their rounds.. they informed us that the fluid around Bentley's heart and lungs are GONE! Therefore, she no longer needed medicine for that. The only other medicine she was taking was a stool softner which her body resolved on it's own. And she quit taking her pain medicine on Friday.. yes, that is right.. major open heart surgery (bypass machine and all) on Wednesday and off pain medicines Friday evening. They could have continued giving this to her through IV, but she did not need it. She showed no signed of pain what so ever. As you can see in the pictures she was happy as always. So back to the update.. fluid gone means no meds. Problem one.. solved! As far as the weight gain goes.. last night at midnight she weighed more.. earlier yesterday they did say she would need to gain weight for 2 more days, but HER doctor gets the last word.. not the floor doctor. He is not concerned about the weight at this point. He thinks everything looks great and could't be better. He even said.. no reason to wait 7 days for follow up.. we will be going to her follow up this Friday. YEAHH!! Then we will head home. I know it seems like everything is moving so fast, and sometimes it does not happen this quick, but it does sometimes.. and in our case there is just no reason to be there when she is ready to go. Bentley is so ready to be out of there, she cannot get any sleep there, at all! So we are relieved to be in the hotel.. where she can rest and recover even more. And if you were wondering what ever happen with the medicine issue.. the doctors seem to believe that Bentley was making herself vomit. As soon as the medicine hit her tastebud she would gag and vomit. They did say older kids do this all the time, but little ones like Bentley do not.. so we were clueless at first. But after becoming quite creative in giving her medicine to her this is what they have concluded. We are extremely happy with the result of everything.. surgery, progress, doctors (all so amazing), nurses (some better than others), and such a great hospital. For those of you that are wondering who did the surgery.. it was Dr. Fraser at Texas Children's. I do not have enough words to thank this man. He is brilliant and God saves lives through his hands. I haven't said anything about Bentley's incision from her surgery.. you can see a little peaking out of her shirts in her pictures but you can't really see it. You are really seeing tape and medicine (to keep it clean) over the incision. I cannot believe how small it is.. I was in shock. I was really expecting it to look so bad, but it is tiny. So impressed!!!

As a lot of you know, Bentley is a very active baby.. she has been extremely bored the past few days. We finally discovered these wagons they let you pull the kids around in, we were all for it. Daddy pulled her around while mommy took pictures.. tons and tons of pictures. She loved it! The girl was turning heads.. she is wearing the cute leg warmers and bow from another heart mommy, Shannon. We love them!!!




Hope I covered the latest updates in this post. Everything is happening so fast and I am so short on sleep... I'm just not thinking clearly. So if there is anything you are wondering just ask in a comment and I'll post about it next time maybe.

We couldn't be happier right now.. well other than being with Bryson and Brenna too. But about the surgery week.. we really are in awe of everything about it. It all happened so SLOW, yet at the same time it went by so FAST! We are just so grateful with the results of everything. It was tough, extremely tough. Would never want to go through anything like this.. but it was so amazing to feel God so close to us. I mean really.. We have never been more strong. The feeling is really indescribable.. all I can say is He was with us.

I owe so much to all of you. We are so grateful for the prayers, although we are not in the clear... God has answered so many of your prayers for Bentley. All of your sweet thougts, prayers, and words of encouragement have blown us away. They have kept me going on a daily basis and I will never be able to show you how much that means to me! A couple of you have emailed me about Bentley's bracelets.. I am so sorry I have not responded. I have been reading all of my emails just taking a little longer to respond. You can still buy them.. we have many.. too many. I will email you back soon. Promise!




If you know Bentley personally, you know she DOES NOT like car rides. Therefore she does not like her carseat. Well.. when we were about to leave.. she spoted it beside her and daddy and she made a big leap for the seat. She wanted to be sitting in that car seat more than anything at that very moment. She was ready to get out of that place. Not even 5 minutes after sitting in the car seat this is what she did. Yes, fell alseep. Finally she can rest without being messed with every 4 hours.

A fabulous blog friend Kristin came to the hospital to visit us today only to find we were discharged.. I'm so sorry Kristin, I hate for you to have gone out of your way when we just left. Glad you got to see your cousin. Maybe one day.. =)

And like I said.. if I forgot to mention something.. just ask!

Bryson and Brenna, we MISS and LOVE you both so much!! Glad we got to spend a lot of time together during the week of Bentley's surgery. But now that you two are back home with Nana and Papa.. we are going to miss you both like crazy! This is by far the longest we have ever been away from you, and it's going to be hard for us. Just know we are thinking about you every minute and I know I am driving you nuts with all my phone calls.. but that's not going to stop!! Love you!!! =)

29 comments:

  1. Yay for Bently!!!!! She is such a doll. Great doctors can just rock your world in that kind of situation (rock in a good way). Great nurses that you deal with are even better, but then there are those nurses that need to find another job. So so glad she is doing well!!!!

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  2. I am so thrilled that things moved so quickly and Bentley handled it like a champ! So no meds at all?? What's that like?? Isn't HE great?

    I'm glad you don't have to experience that again. The cardiologist once a year will be cake in comparison to surgery.

    I'm glad you get to go home over the weekend and resume your normal life. You'll have to post the "scar" picture when it heals a bit.

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  3. Crystal...I was sooo excited to hear from Kristin earlier this afternoon that Miss Bentley had already been discharged! That was just the best news ever. I'm sorry that Kristin missed you, because you would have really loved to meet her. Seriously, she is just the best friend ever!!! Maybe one day you'll have the chance to meet, since you both live in TX. I am hoping to one day make it over there to visit her one day too!

    Well, I am so excited for you guys that things have gone so well! Thank you Jesus!!! I will continue to keep you guys in my prayers!

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  4. P.S. Thanks for the anniversary well wishes. I can't believe it's been seven years already! Can you?

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  5. Im so happy for your family!

    I was just watching TLC "The little couple" and realized that the wife, Jen, is a neonatologist at Texas Children's Hospital!

    Can't wait to see more pictures of Bentleys recovery and hope you get to go home as planned on Friday!

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  6. Wow! What a strong little gal you have! I am so excited this surgery was successful and she is healing so quickly! God is so good!

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  7. Praise the Lord Hallelujah!!! I have prayed and requested prayer for Little Miss Bentley! I am so happy to hear she is doing so wonderful,I am believeing that she will just continue to amaze everyone of us.What an amazing little girl,her story has touched me,and I will never forget her! God Bless!

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  8. Wonderful news! I am so happy that this is behind you.. you can get on with life!

    Shelby

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  9. Are you SURE she just had major open heart surgery?! She looks amazing, happy, healthy, and ready to go home.

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  10. Bentley is absolutely adorable and her strength is awesome. We are so very happy to hear that the surgery went so well and that she is out of the hospital. We continue to pray for her recovery and for your journey home to reunite with the rest of your family!

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  11. Such wonderful news!!! Bentley has become a topic with many of my friends (who are not bloggers). I can not wait to tell them the great news!

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  12. We are soooo happy for the wonderful news!

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  13. God is so good and the news is amazing! Bentley is a real trooper and one little tough cookie. What an wonderful Doctor you had. What a blessing. Super cute pictures I love those leg warmers

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  14. I am just overjoyed at the news of how miraculously she has recovered! That is so funny that she hopped in her carseat and was ready to go! She knew what that seat meant, huh?! LOL! I love the pictures of the wagon ride! Too cute!! I'm just so happy for y'all. As far as going to the hospital.....I was just thrilled to hear that you got to leave because I knew how much that meant to you and that was such wonderful news! I'll be praying that these next few days go by fast and you can go back home and rest. There's just no place like home!

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  15. I have been following your blog for the past few months and have been praying for sweet Bentley and your family! I am so glad she is doing so well, praise the Lord!
    She is a beautiful little girl!
    Amanda

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  16. AMAZING!!!!!!! I couldn't be happier to read how well Bentley is doing. It makes me cry (HAPPY TEARS!!!!) God is wonderful! Those pictures are just precious. As always, she will stay in my prayers.
    Christie

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  17. Such adorable pictures and i love the story of the car seat! Bless her heart..she was ready to go. Thinking of you all...hope you have a good rest of the week!

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  18. So thankful that everything has gone well! I told you TX Childrens was great :) Bentley is precious - she looks great!!!! I pray the weeks ahead will only get better for your family!
    Blessings
    Holly

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  19. Praise the Lord for Bentley and her fabulous recovery. Isn't God just SO GOOD? I am so happy for you and that you will be headed home with your baby soon.

    Still praying,
    Beth

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  20. Oh,how wonderful! I am so thrilled that things have gone so well for little Bentley; God is great, isn't he?

    The pictures were simply sweet; she is a doll baby for sure.

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  21. wow that is wonderful news!! She looked so cute in her little leg warmers!

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  22. Crystal my heart just jumped for joy when I read these post about being discharged!! Man is God good or what! Thank you for reminding me of this with your amazing strength and amazing faith. Something about Bentley's story and your family has touched me beyond what words can explain and I love cheering ( aka praying) for you guys! I hope to meet one day ( in Texas of course since i love it lol)

    God bless!

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  23. Crystal, I hope you dont mind that I put a pic of Bentley on my blog for an update. I have people ask about her that read my blog. She is prayed about a lot here in MICHIGAN!

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  24. WHAT?! DISCHARGED?!...AMAZING! Praise him! Thinking and praying for you all! HUGS!

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  25. I knew it would go well. Congratulations! It's amazing how quickly the children recover, isn't it? I am so happy for your family!!!

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  26. I am so glad Bently is doing so wonderful! This is great news and I am happy for you guys! I hope everything continues to go smoothly! She is such a strong little girl!

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  27. Oh I can't believe she's old enough to stand like that! She's so teeny! :D

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  28. I want to quote your post in my blog. It can?
    And you et an account on Twitter?

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