Saturday, May 23, 2009

HARD DAY

Only have a minute.. just wanted to give a quick update and ask for prayers. Today has been pretty rough on Bentley. She moved out of ICU (around 12:00pm)onto the regular floor.. chest tubes and IV's were removed. She then started having a lot of pain.. they had to increase her pain meds several times before it finally helped. Earlier this evening we ran into another issue... vomiting. Bentley is unable to keep anything down at the moment, she can't even take her medicine by mouth (pain medicine) so she has not had any since about 6pm. She started drinking her formula on Thursday night and has did wonderfully, but this evening vomiting started.. after several attempts with meds, formula, and pedialyte they have decided to start 3 more IV's (now 1am) possibly 1 more during the night. One of these being her pain medicine. So she has gone a very long time without keeping her pain meds in... Poor baby, she is so miserable right now, my heart aches so bad for her. It is so hard to see her this way!!!!

I didn't get ahold of Brittany early enough to post for me, so this short post is going to be it for the night. Will update tomorrow. Bentley is sleeping so I am going to get some rest.

24 comments:

  1. I've been praying for her and will continue to do so. My heart breaks that she's so sick. Get well soon Bentley!

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  2. I'm sorry that she had such a rough day. I am continuing to pray for her and for you guys. I can't even imagine the pain of watching your baby go through that. I hope she improves quickly!

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  3. I will be praying for her today. How were the fevers? Get some rest.

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  4. I hope that this goes away quickly for the little one! Poor thing.

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  5. I am sorry that she is in pain poor baby.
    Hope that she has a better day today . Keeping her in my prayers .

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  6. will continue to pray for you, bentley and the rest of the family. i can't even imagine how hard this is for you guys...so sorry. hope she starts feeling better today.

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  7. Oh poor baby girl..... she has no idea why she feels this way. I know that is so frustrating.

    Will be praying they get a balance of all the meds soon and get her stable again.

    Praying.

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  8. Poor punkin! Praying that she is resting comfortably right now and that this issue is resolved very quickly!

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  9. She will pull through this! She knows mommy and daddy are there for her

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  10. poor baby . I hope that they can little by little regulate her meds that she can tolate them . all my prayers are being headed at you . God is doing his works with Bentley . I know how frustrating this must be for you but I rather the meds issue to work there then it happeneing when she is home . and she will be home asap . she knows she is loved by so many people and that her strong Mommy and Dadddy are there right by her side. I'll keep checking but in the meantime I'll be praying and sending all my love wishes your way. I pray that today is a better day . Sometimes we all do not have good days maybe that was Bentleys. God bless and rest as much as you can . a over tired mommy will not help anyone at all. try to rest as much as you can . hugs michelle

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  11. It seems like they rushed her a little fast out of the ICU. My tof baby was not even allowed to wake up until about 4 days after surgery. We didn't get to our room until about day 6. After that she was still in too much pain for me to hold her while giving a bottle. I would have to give her a bottle while she was still laying in the bed and then kind of sit her up to burp. That's the way she wanted it. We left the hospital on day 8. We were in Children's Hospital of Dallas.
    It seems like she is going through the recovery process pretty quickly. I know you have no control over that, but just keep that in mind when talking to the doctors. Don't let them rush you out the door before you are ready.
    Still praying for Bentley.

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  12. That sweet girl has been through so much! I will continue to pray for her and your family. I hope the doctors got her pain meds figured out in the night so she's not so uncomfortable now!

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  13. Praying for sweet Bentley and that at this point she's feeling better, has better pain control, and is able to rest. Praying for you too.

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  14. Sending more love and prayers. Baby girl is like her Aunt Dana. Every surgery I have had (which is many) the thrid day is always bad. Then everyday after is better and better. We pray it is so with Baby B. Today will be better.
    Love Aunt Dana & Uncle Ronnie

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  15. Crystal and Ryan,
    We want you to know how much we love you and have prayed for Bentley and all of you and your families continously. We are praying now for Bentley to get some comfort, rest and for the vomitting to stop. With all you are going through and the exhaustion you feel, it is so kind of you to give us the photos,updates and stories of Bryson and Brinna too. We know you will be home soon and continue to praise God for his miraclous deeds.
    Luv ya,
    Suzy, Wendell & Peyton

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  16. Praying for Bentley,...and for you all. Try not to fret. God is in control.

    Love in Christ,
    Linda @ Truthful Tidbits

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  17. I am praying for you and beautiful Bentley, try and rest and remember we are all praying for you!

    God Bless you!
    Lisa
    http://myboysmygreatestgiftsinlife.blogspot.com/

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  18. Hi Crystal,

    I got a really bad stomach flu on Wednesday night and have not been out of bed until this morning... and the FIRST thing I did was come to check on Bentley! I am so thrilled to see that she made it through the surgery so very well and that NO MORE SURGERIES will be required!!!! That is truly amazing!

    She looks really good and I will be praying today that they will figure out what is making her sick. All in all though, it sounds like all is going really well and she is already out of ICU!

    Keep hanging in there. I'm sure you are exhausted. I loved the story about the paci... the little things that make our children "them" are so special! I'm glad you got to see that :)

    My prayers continue for a speedy and full recovery... it's almost over... you BOTH did it :)

    Love and prayers,
    Danielle

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  19. Praying that she stops vomiting and feels better soon! My heart just aches for her and you to have to see her hurting. We will be praying for you!

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  20. Praying for her. I hate that she's in pain and been sick...praying that today is better!

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  21. Oh sweetie, I am so sorry that Bentley is having such a hard time. Bless her little heart.....I am praying so much for her, that she will get some relief and can rest and heal. I'm glad you are going to try and get some rest too. Please let me know if you need anything at all. You're in my prayers.

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  22. I am praying for Bentley and your family! She is a lucky girl to have so many prayers and positive thought coming her way! hope she is feeling better today.

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  23. Aww I hate to hear about her being in pain hopefully they will get the iv for the pain meds up and running. I know Bentley wants nothing more than to be in her mommy and daddy arms right now. I pray she begin to feel better soon.. very soon. And you stay strong!

    GOD BLESS

    Suzzanna

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  24. This is the first time I have commented but just wanted to let you know I am praying for your baby girl. I am also praying for you, as a mother I can only imagine how hard it is to see her in pain and not be able to take that away for her. However, you made the comment on how strong she is yesterday and I can tell she comes by that honestly! You are one strong momma!

    Much love and prayer
    Mel

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