Tuesday, March 17, 2009

PICTURES -THANK YOUS - DR. APPT.

Sorry for the poor quality of the video. It is my first..

This is her first year to try t-ball out. I don't think she cares a whole lot about it, but she sure looks cute playing!

The boy can dance.. he is break dancing here..

I heart these chunky cheeks!

Bryson just finished dancing and Brenna is taking a break before she starts back up.

Remember how I said Bryson is the smallest & youngest in his age group.. Well here is how he is going to look playing with all the boys. Good thing he is GOOD.. because this picture doesn't show the height difference enough.. very cute!

Practice was a little windy, but Bentley is always ready to smile for the camera!


I couldn't post all the pictures I wanted since I talked so much today, so I will have another catch up day coming soon with lots and lots of pictures. There are just too many I want to share!

I would like to say a huge thanks to everyone praying for Bentley. It brings tears to our eyes to see people that care so much. When I started our blog, I did not know how connected the blogger community was. I started the blog to keep family updated on Bentley's condition as well as Bryson and Brenna. But I have been AMAZED to see how connected everyone really is, how religious you all are, how caring you all are, how friendly you all are, and I could go on and on. So from the bottom of my heart I want to say thank you, thank you to all of you that have prayed and praying for Bentley, emailed, commented, following her journey, and posting her prayer button. Each of you have helped given me peace knowing that there are people like you out there all over the world that are praying for our little girl. Please continue to keep her in your prayers as we have a tough road ahead, with her open heart surgery soon approaching. If you are one of these people, leave a comment if you wish and introduce yourself! I would love to see you all! I also owe a HUGE thank you to Kelly. Kelly has changed many lives, mine being one of them. I found her blog when she gave birth to Harper, I have followed their journey ever since. Her journey has reminded me to put ALL my trust in God. So much peace comes with that. So thank you Kelly for all that you do! I am still praying for precious Harper and I am so glad that she is so happy and healthy. What a miracle she is, and what a special little girl to have a mom like you!

We will soon be going to the pediatricians office.. Bentley is due for her next Synigis shot. This shot is very important, it is the one that helps prevent RSV. It does not prevent it completely but it does decrease the chances of getting RSV and I have to say it has been wonderful to us so far! I will be finding out her weight.. and checking her oxygen level.. this is very important, her oxygen must stay high or else they will reschedule the surgery for an earlier date. I am going to attempt my first wordless Wednesday tomorrow, so I will update about her appointment on this post when we get back today. So if you come back to check on Bentley after her appointment, scroll down here to read the details.

UPDATE: We had a great doctors visit, Bentley's oxygen is was 100% PRAISE GOD! Prayers are working! With her heart condition, her oxygen should not be this high, it should be in the 80's or lower. GOD IS SO GOOD!! Unfortunately, open heart surgery is the only way to repair the defect.. and it must be repaired for her to survive. As scary as this is, I am so thankful there is a way to repair the defect. GOD IS SOOOOOOO GOOD & HE IS PROTECTING BENTLEY! Please keep the prayers coming!

5 comments:

  1. I am so glad I found you on here, being able to pray for you means alot to me...I know that God is amazing and he will be there holding your family through this whole journey! Thank you as well for the many prayers you pray for me...you will never know how much it means to me :)

    Love,
    Tiff

    P.S. the pictures are ADORABLE!!!!!!

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  2. I am too am so glad that I found your blog (through Kelly.) It is amazing how believers can get together and lift one another up in prayer and really see the results! God is so good! I am honored to be a part of your precious little girl's prayer team.
    Thanks for taking the time to stop by & comment on my blog earlier, so sweet of you!
    Sending hugs & prayers from NH,
    in Him, Erika

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  3. We are praying for your beautiful Bentley. I found your blog through Kelly's.
    Our God is such an awesome God!

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  4. I know that miracles happen because every morning I go into a pretty pink room and wake up our miracle. I know you must feel the same about Bentley! Ky was always in the 96-98 category too, which amazed everyone considering she had no inner structure to her heart and basically had a pool of "purple" blood in there!

    Still praying in Kentucky :)
    Amber

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  5. THANK YOU! For openly sharing Bentley's story. I too, never understood the power of the blogging community. I started my original blog 5 years ago but closed it due to some personal obstacles. I reopened one last year and since have been struggling with so much personally. I look to this community, to my blogger friends who have never met me or never really acknowledge my existence in their blog world but there is a certain connection here, a sense of unbias, non judgemental unity. I can say for myself, that I will always be here for you though we have never met, and that Bentley will forever be part of our nightly prayers. I just started to transition into faith, knowing the power of prayers has gotten so many so far, and the belief in faith has taken them to where they should be.

    My oldest son was hospitalized with RSV and it was a scary time in my life. I wish they had the shot 8 years ago and I wish I had the support system that you have now. Bentley will be tip top for her surgery, and I pray that she recovers quickly and completely. I cannot wait to see her conquer the world!

    Again, THANK YOU!

    ReplyDelete

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