Good News: We are leaving in 2 weeks for Bentley's open heart surgery.
Bad News: We are leaving in 2 weeks for Bentley's open heart surgery.
"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Philippians 4:6-7
Thank you for reminding me of this Misty. We have good days.. we have bad days.. this is the hardest thing we have ever had to face, but we know God is protecting her.. and He will protect her on May 20.
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UPDATE: Tried to post a fun blog today but ran into problems. It will be up tomorrow morning, check back then... so you can join in on the fun!
Awww, I know it will be a very stressful time with much anxiety and worry...but everything is in God's hands. May He be your comfort and your peace during Bentley's hospital stay. praying for sweet Bentley.
ReplyDeleteThat is such a cute picture of her. The fuzzy bow is almost bigger than her little face. Too cute. You can tell she is such a fighter. She is a strong cookie mommy.
ReplyDeleteIts hard, I know, because when I think of THAT day, I feel anxious for her as well. Then I start praying and I feel peaceful.
This girl is in GOOD hand. Amen.
God Bless and have a great day friend.
I can't imagine how difficult this must be for you right now. I'm keeping your family in my prayers right now!
ReplyDeleteSuch an adorable picture...she's just precious!
Hey sweetie! I've been thinking about you and your family alot lately! I am praying so hard for you! It's a very strange thing for me, my wedding anniversary is on May 20th and if you ask anyone who knows me I seriously count down the days until my anniversary, however this year it's different--I don't want May 20th to come any sooner than it has to for your purpose...I know you are ready in a way, but not in another...I'm so thankful to have found your blog and have been given the chance to pray for your family and grow closer to you! You have opened my eyes in so many ways!!!! If you need anything, please don't hesititate to call me, text me or email me sweetie! I will and am always here for you!
ReplyDeleteLove-Hugs and Prayers,
Tiff
All I can say is a big 'ol AMEN! She's protected and covered by the big wings of The Boss.
ReplyDeletei am new here. i will pray for bently. poor baby. she is gorgeous.
ReplyDeleteThanks for the sweet comments. God has definately showed his presence in our lives and comforted us in the most difficult times in our lives. We have found praises in everything- even through the storm! I am praying for your sweet girl and for your family!
ReplyDeletei just ran into yopur post. I have been following some others and saw your link on several of them so decided to check it out. I'm glad i did! I too am taking my child to multiple dr appts, not for the same reason, but feel like maybe i should be getting second opinions. Reading your posts makes me feel like i wouldn't be a complete spaz if i did! Thank you! good luck with everything!
ReplyDeleteShelby
and by the way, Bentley is beautiful!(as if you didn't know)
My prayers are with you and sweet chubby cheeked angel you have:0) God Bless
ReplyDeleteWe're praying for Sweet Bentley, until she is free and clear from all worries. Trust in Him, Believe in Him, and know that we are all here for you.
ReplyDeleteI can't imagine how anxious you must be feeling, so many mixed emotions.
We are praying for guidance and wisdom of the great team of doctors, we pray that the Lord will be watching over Sweet Bentley until she is safe and healthy in your arms.
We love you Bentley :D
Analiza
Thanks for dropping by my blog for Kelly's Kitchen Tour! I WILL BE PRAYING FOR BENTLEY!!!!! I added her button so everyone will know about your sweet little girl. What a little angel!
ReplyDeleteTrust in the LORD with all your heart And do not lean on your own understanding. Proverbs 3:5
Love and prayers from KY,
Brittany
Hey there,
ReplyDeleteGot your email from today. Sounds like it's gonna be something fun!
Just wanted to let you know that I have something for you over at my blog today. Be sure to go there to pick it up!
Hi Crystal!
ReplyDeleteYou don't know me, but I got to your blog from Kelly's Korner. I'm almost 34 weeks pregnant, and we were told at about 20 weeks that our baby had an Interrupted Aortic Arch with VSD. I know it's not exactly the same situation or diagnosis, but it kind of sounds similar to what you were told about Bentley, just opposite, if that makes sense??
Well, I just wanted to encourage you that God has a plan to bless your family and that He still heals and performs miracles! We've already seen proof of this in our situation because our little girl's heart started out with the left side being normal sized and the right side being twice as big...now it's SYMMETRICAL!!
Some scripture that has encouraged me lately comes from James 6:16 ("the prayer of faith will heal the sick!"), and Mark 11:24 ("whatever you ask in prayer, believe that you have received it, and it WILL be yours"). I know that God is going to get the glory out of your situation, and please know that I will be praying and believing that Bentley is healed!
Much love,
Lindsey
Hi Crystal...
ReplyDeleteThe friend who I referred to does not have a traditional "blog", but does keep a "CarePage". I have a link to it on my blog... he is under "Zachary John Hagerott". I am not 100% sure, but I think one of his defects is the same that Bentley has. He has more than one defect though. He had his first open heart surgery about a week after birth and has recovered very well from that surgery. You would never even know he had a heart defect by looking at him! He will have a 2nd open heart surgery in June at the University of Michigan in Ann Arbor. Like all of you "heart moms", I stand in awe of Michelle (Zachy's mom) as she handles such terrifying and uncertain circumstances with tremendous faith, courage and grace. I will be praying for you as these two weeks approach and I will be checking in on Bentley frequently. I added her cute little face (her button) to my blog as I have several "heart mom" friends who will want to "meet" your sweet little girl too!
And tell your hubby... "Rock Chalk"! My husband and I met our seniour year at KU. After we were married for about 2 years, we moved to Austin and my husband went back to school full time at the University of Texas to get his MBA. Try as he did, he could never become a full blown Longhorn fan! He's true blue and now that we are living back in Kansas, he has splurged on season football and basketball tickets! He loves his Jayhawks and has adequately "brainwashed" my 4 year old son :)
Anyway, it's nice "meeting" you and although I can't relate to what you are going through, I will be praying for you because my mommy heart breaks for any mother who has to watch their child have any kind of surgery... let alone open heart surgery. I know God will be protecting her though and through the human hands who operate, will heal her with a whole and healthy heart!
God Bless You (my big-bow loving blog friend!),
Danielle
oh she is precious!
ReplyDeleteYou are all in my prayers!